Hello all, I’m back from my hiatus with a little update:
I got a new bed that uses sand and air to help with my back pain. Apparently the criteria for using this bed is really high, but my doctors and nurses were able to pull some strings. It’s usually for patients with bed sores and it helps stimulate blood flow. It’s super soft and feels like I’m back at Myrtle Beach. The only downfall is that it’s super loud. It sounds like flying in an airplane. It has really helped my back pain but hasn’t cured it.
I was feeling blue for a little while and all I did was cry. If I wasn’t crying because I was sad, I was crying because of my back pain. I was tired of having to go through the same routine each day. And being in a cloud of morphine wasn’t what I wanted, especially when Nico was visiting because I never got to spend time with him.
I spoke to a psychiatrist and he asked me a bunch of questions. He gave me a choice of trying an exercise for a week or taking anti-depressants. I chose trying the exercise because I didn’t want to add more meds to the list. The exercise was to figure out how to manage my pain so that I could do the things I enjoy. My doctor suggested a different type of pain medicine that uses a patch and gives a low, consistent dose throughout the week (kinda like the nicotine patch for smokers trying to quit). During the first few days I asked for morphine maybe once or twice. Then I stepped down to using Tramadol whenever I noticed any signs of pain creeping up, and now I haven’t asked for morphine or Tramadol.
I was starting to feel like myself again. I would ask Nico to come sit in the bed with me, Mike and I could actually talk to each other. So, so far so good.
About a week ago, Dr. Simpson told me there was only one person in front of me on the list and that he predicts I should be hearing something within the next 2-3 weeks. I didn’t think much of it because I was in my blue mood. But now that I see I can be pain free and enjoy being myself again, I am feeling hopeful. If what he predicts actually happens, I might be home at the end of April! Thank you for sending me all your good juju and mighty prayers, it seems to be working!